I went into the hospital July 23rd – pretty sick. I got home on the afternoon of July 30th – weak, feeling better, and very happy to be home. (To see the whole sordid tale – read here.)
I was discharged with an order for 4 to 6 weeks of IV antibiotic infusions at home. My daily schedule is something like this:
9:00 am – 500 mg Flagyl (oral)
9:30 am – take my IV meds out of the fridge
1:00 pm – First infusion (Ceftriaxone)
5:00 pm – Second infusion (Caspofungin)
9:00 pm – 500 mg Flagyl (oral)
In between I deal with nausea – thankfully, no more vomiting since the Zofran came home! J
I have little or no appetite – cause, well, when you’re barfy you don’t really care, you know?
I work SO HARD every day to get all of my fluids in. Some days I do great. On barfier days, not so great.
I’m getting some of my supplements in. Others I’m not really supposed to have while I’m on all of the antibiotics. But I got tanked up while I was in the hospital with iron, magnesium, and potassium infusions, so that helped a lot. They are watching my labs closely – apparently this antibiotic therapy can really tank you out – so I’m glad they get why it’s so important.
A couple of days ago I felt like, “You know. I think I’m getting better.”
Today – not so much.
I hate that.
Over the past four or so days my left shoulder pain has become much more pronounced. Last night it was nearly unbearable. I do still have some abdominal tenderness over the abscess site – and yes, that can refer to the shoulder – and did – BIG TIME – before. But this time, the shoulder pain is different. I gotta wonder if it’s the PICC line.
I’ve mentioned the pain to the nurses – they’re awesome, by the way. My friend from church – Karen – is actually the coordinator – I was so blown away when I found that out! How cool is that?! She’s been so kind and patient with me – the big time PICC line wimp. They have schooled me in what I’m supposed to do with what symptoms and so I’m watching, paying attention, etc.
Tomorrow I see the fab Dr. Zelko for my 2 week follow-up. We’ll see what he says.
The big baby in me is worried he’ll want to re-hospitalize me. I so do NOT want to go there!
I’m almost sure he’ll send me for a repeat CT scan. (Oh please, Lord, let him order the one that doesn’t make me have to drink the stuff that’s sure to make me hurl all over the floor. It’s making me want to hurl right now just thinking about it! YUCK!)
Depending on the CT results, I may have to go for another visit to interventional radiology – the part where they take the BIG needle, poke it through my side, and pull some of the abscess that’s there out, so that they can culture it again. That’s not that awful because you sleep through it for the most part. But – well, okay – it’s kinda freaky.
I’m feeling like a big whiny baby right now.
I’m just so ready to be well – and I want it to be QUICK and DEFINITIVE.
Dang, I’m sounding a lot like a toddler, huh?!
Guess I better go find another Jolly Rancher to fight the disgusting taste in my mouth and do some dishes. Life does not slow down when you feel like crap.